Has Caregiving Changed You?

Has caregiving changed you?

Do you no longer feel like yourself?

Has a part of you died?

I know. I felt this too. I felt like I lost myself in some way.

I lost my spontaneity, at times, my hope, and most days, my freedom.

But I’m here to let you know that it won’t always be this way.

Yes, caregiving disrupts your life.

Yes, caregiving dumps stress on your life by the bucket load.

Yes, caregiving will test every physical, emotional and moral fiber you have–and it hunts for frays and weak spots.

But I’d still do it again. (I wince to even think about it!)

And I know what I’m talking about–I cared for my mother who had Parkinson’s and Alzheimer’s–and she lived with my family and me for the last almost two years of her life. I cared for her for about 15 years before that–everything from going to see her once or twice a week, to a combination of hired care, community care, overnight stays, and her coming to my house. We tried to keep her in her own home, her own church and neighborhood for as long as possible.

So, my point is, I’m no wuss, and when I say I’d care give again, it’s not because I have so romanticized version of family life stuck in my head. And I wouldn’t jump up and down volunteering either. Why? Caregiving has to come to you out of genuine need. I know that one day, I will, or my husband will care give. We will care for each other. I know that–the love, the commitment are already in place.

But I’m not not going to care give the guy down the street. I might make him and his wife some meals, but my marital relationship warrants caregiving. And still, I certainly don’t look forward to it–because it’ll be one of us is sick, or we’ve aged to the point to where our bodies are breaking down–that death is coming all too soon.

Caregiving continued to change me even after my mom passed away, and all those negative ramifications finally began to leave my system.

Caregiving has done something to me. I’ve changed again-in good ways.

I’m more patient. When I’m with someone now, and I know they need me, I just let go of all the other crap of life.

I’ve learned to be present. I don’t know if I did this so well when my mom was alive, and maybe this happened because at times, I wasn’t present at all with my mom. I wanted to be anywhere but there. Some days, I would have gnawed my own foot off to get free. And here I am, tell you, I’m glad I did it.

I’ve learned to take every, every, every opportunity that comes my way. I’m like that old TV show, My Favorite Martin–my antennas go up whenever a great thing comes my way. I can’t NOT try something new, dance when music plays, make a fool of myself if the occasion calls for it.

I’ve learned that the only regrets at the end of life are not all the things you screwed up. it’s all the chances you didn’t take. Since this caregiving revelation, I’ve eaten squirrel, kissed a snake, held a giant stingray in my arms, skinny dipped on more than one occasion, taken two a.m. bike rides and made out on a pier under the moonlight (with hubby, FYI). I simply can’t let life pass me  by. Death did that to me. It singed me and I have to live and love big and hard. I refuse to mewl about my unlived life when I can do something about it…now.

I’ve started speaking  my mind. I’m tired of being a coward and taking S**T. I don’t have to blast people, but if you bully me, corner me, or shame me…get ready cause I am too old and I’ve gone through too much to not stand up for myself.

I’ve learned to be easier on myself. I’ve given up worrying about housekeeping–a nap is infinitely more important. A swim on a perfect day is by far, a better use of my time.

I’ve learned not to sweat so much about money and jobs. In the end, these things matter so, so little. I’m still learning this one, but I’m grasping onto this bigger thing: if I do what I love, what I’m gifted at, what I’m passionate about…people value me and pay me pretty darn good for it. And I can’t seem to stomach the idea of paying my dues and feeling like I have to suffer.

I’ve learned that I really do like to do good work. I want to do something, some small thing that matters. i want to write and speak and encourage others. I want to somehow contribute to the good of the world.

And finally, I’m learning to let go of grudges, hurts, and resentments. They really do fade in time. Things I was so heated about 20 years ago don’t faze me now. People I despised and feared are now toothless old lions, and we’re all in the Savannah together just trying to find a little shade and water. it’s not so big, scary and important as I once thought it was.

Where are you? Still in the dark nights of the soul? Has exhaustion and cynicism taken its toll? it’s part of the journey.  It won’t last. Caregiving will continue to change you–let it  

I’m Carol O’Dell, and I hope you’ll check out my book, Mothering Mother: A Daughter’s Humorous and Heartbreaking Memoir, available at Amazon

Does Caregiving Affect Women Differently?

People think women by nature are nurturers. Not so.

This isn’t a new phenomena born out of the 60s, and I’ve met many men who are the primary caregivers for their moms or dads–and certainly their spouses–and they do are tender when needed, tough when required, meticulous and thoughtful.

And yet, we default and think that the women of the clan/family unit will be the one to take on this role.

It doesn’t matter who care gives. It’s often now a matter of timing–many men are now free to have jobs that work out of home, or they retire early, or they are only children, or they happen to live in the same city as their parents–so let’s begin to dispel this myth.

But if you are a woman, and you’re a caregiver–perhaps you’ll recognize some similar reactions and emotions to caregiving.

Throughout all of history, there have always been an array of strong, amazing women–from politicians, queens, equestrians, entrepreneurs, to the more traditional women’s roles of say, nursing and teaching. All of us are unique and our caregiving will express our personality and temperaments. 

When caregiving enters a woman’s life, her thoughts and perceptions are slightly different as daughter or wife than if she were the son or husband.

I can only speak for myself.

I became a caregiver slowly–over the years after my adoptive dad died and my mother began to need more and more care. At first, it was a daily phone call, a weekly visit. At the end, it had become a 24 hour a day way of life–to care for my mother who had Parkinson’s, Alzheimer’s, and heart disease, in my home as I wiped her brow and wet her lips–and we waited for her passing.

A lot happened in between.

I wrote every day to express what caregiving was doing to me. I wrote to express reason of trying to figure out my “womanhood” in the midst of this.

I wrote because I had to figure out how to navigate my way through–and somehow maintain a sense of self that felt threatened by sleep deprivation, middle of the night awakenings, multi-tasking children and a husband with nursing responsibilities of baths, pills, and therapies.

I was already a daughter, then a mother to three of my own daughters. I was a woman in my late 30s, a wife, a friend, a small business owner (I had started and was the director of a small private school outside Atlanta).

Caregiving made me acutely aware of my woman-ness, of what I had to offer my mother. And what I didn’t. More than once, I had to face that I wasn’t strong enough to lift my mother up off the floor after a fall.

 I was aware that my mother “obeyed” my husband and would calm down, stop pitching a fit at the mere sound of his deep, authoritative voice. She certainly didn’t respond to me that way!

I was also aware how I could soothe her, understand her needs, her lacks.

I wrote about redefining beauty as I looked at my mother’s aging body–her wrinkles reminding me of a beautiful taut sail with no wind to drive it, fill it out.

I wrote about sex, and how very difficult it was to let go and be a woman, naked and vulnerable–with kids, dogs, cats, and my mom down the hall, one door away.

I wrote about my mother’s clothes, about broaches and pearls, and pocketbooks, and how very long her “accoutrements” stayed with her, defined her. I wrote about the 20+ shoes, gorgeous snake-skin, leather pumps, patent leather shoes that were no longer needed but hung on the shoe rack on the back of the door–waiting–not quite aware they would never be slipped on again.

I wrote about my mother’s hands, and how even after Alzheimer’s took her abiity to remember, to speak–it did not take her gestures. She still lifted her elegant fingers and placed them on her jawline in just the same fashion she had for the last 40 years of my life. My mother, her essence was at least there in gesture.

I wrote about my urge to get out among the living, to shop, to get the oil changed, buy a dress–to be engaged in things people do to stay busy. I wrote about my hunger to make a margarita, slip on a silky skirt and feel, feel, feel pretty again.

What does pretty mean?

Is that the definition of being a woman? Certainly not, but I do recognize that it’s a need I have–and I don’t think it’s just a reflection of society.  Caregiving certainly challenged my perception of “pretty.”

Caregiving gave me cause to look at, examine every aspect of my femininity.

Not necessarily the sexy fishnet stocking variety, but that long, long after estrogen,

I still will have the right to say I’m a woman. At any age.

My mother retained a sense of regalness, almost entitlement to her gender.

Caregiving rang out in my head like a bell–calling the three generations of women–my mother, me, and my daughters to an almost rallying cry.

We are connected. We are history, legacy, present, and future.

What we do today will continue to reverberate.

My mother, my example. Me, my daughter’s example. A living example. What will I choose to do today? What words, what actions are mine to pass on? What secrets of mine to do they know?

What is it that do we not say that echoes through our halls?

I remember one particularly difficult day when my middle daughter and I were in the bathroom having one of those “mirror conversations.” My mother had grown increasingly violent, out of control–her Alzheimer’s was like a hungry dog demanding I fill its bowl, a bowl with no end.

“Why don’t you just put her in nursing home?” My daughter said, aware of my heartbreak and exhaustion. It wasn’t said in a cold manner–more like, “You don’t have to kill yourself, you know.”

“I won’t say it’s not a possibility,” I said, “but one day, you and I will be standing right here, in front of this mirror, dressing for my mother’s funeral–and I’ve got to look at me in this mirror, look at you in this mirror, and I’ve got to know that I did all I could.”

Somehow, we got through. We.

I cared for my mother. My daughters cared for me. Yes, they sat with my mother, but their love, their devotion was for me. The torch had been passed.

Yes, at times I almost lost my woman-ly-ness along with my sanity–and almost my freedom as a law abiding citizen–aka JAIL TIME for losing it!). Weight, scraggly hair, bone crushing exhaustion, can’t put two words together, an aching for relief so bitter because I knew relief would only come with death–it was all there.

But like a sail, new winds come. I survived.

I’d like to think that my woman-ness guided me, that intuition kicked in, that I was able as a woman, and a daughter to give my mother something she needed.

How does caregiving affect a man? I don’t know. I’d love for someone to share. 

~I’m Carol O’Dell, and I’m the author of Mothering Mother. I hope you’ll visit again.