Are You Dreading the Death Date of a Loved One?
April 27, 2009 by carolodell
Filed under Alzheimers, Caregiver Stress, Carol O'Dell, Contributing Authors, Featured Articles, Grief and Loss
No matter how much you try not to think about it, you dread the day your loved one died. It’s especially hard, those first couple of anniversaries. Perhaps you spent years caregiving and you’re dealing with the void in your life. Perhaps it was sudden and you feel as if the bottom fell out of your life. It feels as if you’re going to get physically ill, dreading this day.
Even years later, a dear friend of mine wonders what’s wrong with her come late May, early June. I remind her that’s when her father died. He commited suicide and took the life of her step mother as well. No wonder everything in her repels this awful day. Who would want to remember? Once I remind her, she can relax. Her anxiety has a reason for being there, and that fact alone is ironically comforting.
My friend has learned to let grief wash over her. Once she recognizes it, she lets it be a part of her again. She knows it will pass, but she also knows that fighting it will only make it worse.
But your body does whether you do or not. Our bodies have “muscle memory.” Just like poison ivy, grief and sorrow gets in your system and comes full circle the time of year your loved one died. You have to give into the grief.
How do you get through that death date?
Everyone has a different way of dealing, so find what works for you. Here are few suggestions to consider.
Instead of avoiding, give in. Have a day to cry, to grieve, to remember your loss. Write your loved one a letter. Write them a angry letter if you need to. Perhaps you’ve put off facing the fact that you are angry and hurt. Maybe not at them, but that they left you with so much to deal with. Maybe you are furious with them, some left over business. So be furious. Write that letter. Stay home that day and yell at them and finally have it out.
Trust your gut. Whatever you need to do, do it.
For others, it’s a bittersweet time. Get out those photos and say goodbye all over again. The day your loved one died or the day of their funeral or memorial service may have been such a shock that you were out of it. You could have been so nervouc, so zoned out, so medicated that you didn’t “feel” your grief the first time around. So do it again. Have you day to say goodbye. Visit the memorial gardens or place you spread their ashes–or create a new place for you to go. Make “right” on saying goodbye to your loved one.
Or maybe you need to avoid. Running feels right, and I won’t tell you not to. Eventually, yes, you’ll have to face all this–but you’ll know when. It may hit you one day and you can no longer avoid upir sorrow. Until then, do what you have to do. Yes, it’s healing to face our grief, but we’re all on different times.
Death dates get easier. Maybe not sequentially–you might have good anniversarie and bad anniversaries. But you will come to a place where you can breathe again.
Does Caregiving Stress Your Marriage? Grow Closer in Your Caregiving Years
April 1, 2009 by carolodell
Filed under Alzheimers, Caregiver Stress, Carol O'Dell, Featured Articles, Grief and Loss
Is caregiving hard on a marriage? It can be. But it can also be a wake-up call. Sometimes our marriage can be defined by what we’ve survived. Yes, caregiving was stressul on marriage–at times. I wrote in my book, Mothering Mother that I felt like I was a giant ice cream milkshake and each of my family member had a straw–and they were all sucking on that straw trying to get more of me. At times, one would pick up the glass and tap the side, or another would dig deep with the spoon trying to get the last drop.
That’s what it felt like–that I there wasn’t enough of me to go around. Sandwich generation moms really feel this struggle. But looking back, I also see what a rich and textured time it was in my life. Being needed is a good thing. Feeling “cushioned” or sandwiched on both sides can also be comforting and defining.
Did my marriage suffer? Yes, at times. It’s difficult to know how to juggle everything.
My husband got the worst of me. He got the sleep deprived, always griping about something, not very romantic or considerate–me. He knew when I came to bed, I might have to get back up in 30 minutes, and maybe even 3 or 4 times that night. He knew that if my mom had a particularly rough night that he’d “pay” the next night–with a frozen pizza for dinner, or he’d pitch in, do the dishes or take the girls to an activity while I sat zombie-fied on the couch.
But we made it through. He was patient. Understanding. Tolerant. I’m sure at times, I made it harder than I needed to by complaining. We create a lot of our own troubles. He’d hold me in the shower and just let me cry. My mom’s Alzheimer’s was hard–physically and emotionally. He’d wash my hair and towel dry me and I would still be crying. He’d pick my mom up when she fell out of bed or was yelling that someone broke into her room. He was firm when I needed him to be, kind when he needed to be.
Make Caregiving Easier on Your Marriage:
- Be a team. Don’t make each other the enemy. Stay on the same team. Tag team, take turns, help each other out.
- Don’t both of you be down at the same time. It’s pretty natural that if your hubby has a bad day at work, you make him a cool drink, you listen, and you encourage him that tomorrow will be better. If he had a rougher day than you did, then keep your mouth shut and let him vent for a change.
- Not trying to be patronizing to you guys, but my husband doesn’t “need” too much. If I smile when he comes through the door, ask him how his day was–and listen, give him something to eat )–anything, (or ask him to pick it up) and give him some lovin’ once in a while–he’s a happy guy. I’m glad I know how to please him. He knows what I need, too.
- Make time for each other–every day. I don’t care if it’s a walk to the mailbox. Hold hands and take your time. Sit together and have dinner. The wash, the dishes, the baths, the meds can all wait. Even if you have to sit in your mother’s room and eat frozen pot pie off tv trays, being together is what counts.
- Play! Flirt! Chase each other around the house and give each other towel snaps. Turn up the radio and dance in the kitchen. You may not be able to get away–so don’t use that as an excuse. Use that sense of adventure, imagination and humor and sexiness right at home. We used to sneak kisses in the laundry room–and it made me think back to our dating days and trying to grab a kiss without “mama” catching us.
- Keep that love life going. Now, I know, you don’t feel like it. But sex can be like exercise. I rarely “feel” like exercising, but once I get rolling, I’m glad I did. Do it any way. Maybe you can’t muster that 100% of the time, but your spouse needs you–and face it, who else in this whole world will give you what you need if not your spouse?
- If you lose your temper, say you’re sorry. Your nerves are bound to be raw. If you yell, snap, get sarcastic or downright mean–be quick to say sorry–and be quick to forgive.
- If you’re at the end, and your loved one is in hospice care, then know that this won’t last forever. Your life, your routines, your family traditions will all go on hold, and this is going to be hard, but get through the best you can.
- If you lose your way and your relationship feels stretched beyond its limits, or dry as a saltine cracker, trust that you’ll find your way back. Relationships are resilient, and caregiving doesn’t have to break it.
In the end, and caregviving does sadly end, you’ll be able to look at each other and say, “Look what we did.” Loving each other through the storms of life–the sweet times, funny times, and stressful times is really what it’s all about. And if you need help, seek marriage counseling. Hurts, resentments, misunderstandings build up over time–so get them worked out before they fester.
Sometimes you don’t know how good your marriage is, until it’s been tested. Is caregiving hard on your marriage? Sure. But you can stay together and even grow closer by the experience. Iit can also show you just how strong the two of you really are.
I’m Not Sure I Want to Attend a Caregiver’s Support Group
February 25, 2009 by carolodell
Filed under Alzheimers, Caregiver Stress, Carol O'Dell, Contributing Authors, Featured Articles, Uncategorized
I have to admit that I didn’t attend a caregiver support group while I was caring for my mom.
Not everyone is the “group” type.
I started full time caregiving back in 1998 and honestly, I didn’t even know caregiving support groups existed. I had decided that it wasn’t going to be to go and talk about my mother! Yeah, I’m stubborn.
By the time I figured out my way in “caregiving land,” my mom was pretty far along. It’s not that I didn’t need a support group. I’m sure my friends were sick of my griping and whining.
But honestly, what little energy and thought I had were used to continue to parent my children.
In addition to my mom’s meds, physical therapy, and every day needs, I also had to think about SAT prep, teaching my youngest how to drive, helping another study for a big test, making sure they attended a youth group–and my spare time was spent driving them or making sure they got to their activities.
And that’s the way it should be–that’s what it’s like to be a sandwich generation parent. Juggling needs.
But now I know now that it would have benefited me greatly to attend a workshop, conference or support group–at least a couple of times a year.
Caregiver Support Groups Help By:
- Giving you a safe place to vent
- To know you’re not alone
- To find out about your community’s resources
- To make short and long term plans
- Helping you understand what part of the journey you’re on
- To give you validation and permission to feel all that you’re feeling
I encourage you to do a bit of Internet browsing and find out what’s available for you–almost every city and county offers something–an Alzheimer’s Association meeting, an American Heart Association gathering, stroke group meeting or a hospice based workshop.
I also realize I had an aversion to caregiving groups because I didn’t want to face the reality that I was a caregiver. I didn’t want to slap that on a name tag. I was in my late 30s when I crossed that line from being just my mother’s daughter to also being her caregiver.
If You Do Attend a Group or Workshop, Make It Worth Your While:
- Talking to someone while you’re there and even exchanging email addresses or phone numbers
- Ask a question–chances are if you don’t know the answer, others don’t know it either–and would really appreciate your candor
- Get info, lots of info–and follow up, make some calls or check out various groups on the web
- Many home health organizations attend these workshops–you could find some great resources, so look around
- Begin to take pride in your caregiver’s “badge of honor.” Get educated. Help others. Be okay that this is who you are and where you are–for now.
The good news is, you can accomplish a lot of this online. There are chat rooms, forums, and even online workshops–so even if you’re an introvert, you can sit in your PJs and find a caregiving buddy as well as access to lots of resources–all online.
Go on, type in caregiver support group and the name of your city or area. Find out what’s available.
Join an online group, or just call up a good friend–caregiving support has many faces.
Author of Mothering Mother: A Daughter’s Humorous and Heartbreaking Memoir



